An Epilepsy Charity group will hold monthly events in Sheffield from March 10 for anyone with epilepsy to talk, listen and share their experiences.
The Epilepsy Action Sheffield Branch event will be the first in a series of face-to-face monthly meetings aimed at providing support and advice to everyone affected by epilepsy in the Sheffield area. These events will will take place at the United Reformed Church and is open to anyone affected by epilepsy, including patients, family, caregivers, friends or colleagues.
Media Manager for Epilepsy Action, Claudia Christie, said: “Over the past two years, many people with epilepsy have felt very isolated. It is even more important now that we provide a safe space for people to meet and share their experiences and learn more about the condition from trusted sources.
Epilepsy Action is the UK’s leading member-driven charity, reaching over 600,000 people with or with an interest in the disease.
Ms Christie said epilepsy is one of the most common serious neurological conditions in the world, affecting more than 50,000 people in Yorkshire and the Humber.
She added: “It can be very confusing and worrying to be diagnosed with epilepsy. The impact of the disease goes far beyond seizures and can affect all aspects of life, including work, education, conduct, family life and relationships.
“In simple terms, epilepsy is a disease that causes epileptic seizures. A seizure is a sudden burst of this electrical activity, which can cause a person to experience new sensations or movements. This can be caused by various reasons, such as brain injury or genetic factors, but for some people there is no clear cause.
Ms Christie believes that although understanding has improved in recent years, there is still a long way to go before anyone with epilepsy can live in a world of fact rather than fiction.
She said: ‘We want people to see that there is life beyond epilepsy.
“People who attend these events can meet others who may have experienced similar issues regarding their condition and know that they are not alone. They will also receive help with some of the issues that the epilepsy can sometimes bring.
Meetings will be held on Thursdays from 7:15 to 8:45 p.m. on March 10, April 14, May 12, June 9 and July 14.
You can learn more about epilepsy and get help here or through the Epilepsy Action helpline: 0808 800 5050
The is also a page dedicated to supporting young people with epilepsy.