Dravet, others raise awareness of epilepsy in November

Wearing purple clothes and sharing personal stories, supporters observe National Epilepsy Awareness Month in November to draw attention to epilepsy and associated disorders, such as Dravet and Lennox-Gastaut syndromes.

More than 65 million people around the world live with a central nervous system disorder. A third of them have uncontrollable seizures.

The Epilepsy Foundation has a multitude of ways people can show their support for this year’s campaign, themed #RemoveTheFilter.

“During National Epilepsy Awareness Month (NEAM) in November, join the Epilepsy Foundation as we #RemoveTheFilter and highlight not only the challenges that people with epilepsy may face, but also the importance of raising awareness to support the more than 3.4 million people with epilepsy nationwide. The foundation writes on its Awareness Month webpage.

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“Use the power of your trip to make a difference,” he adds.

The foundation’s webpage offers facts about epilepsy: 10% of people will have a seizure in their lifetime and 1 in 26 will develop epilepsy. Some 470,000 American children live with epilepsy, a disorder that receives 10 times less funding than other brain conditions.

Patients and their families, friends and caregivers are also encouraged to share their stories so that people can better understand the community and what it’s like to live with epilepsy. Submissions (words, videos or photos) will be posted on the organization’s eJourney community blog.

During the month, supporters can also take advantage of the organization’s Seizure First Aid Ready course which includes entertainment, videos and activities. After completing it, participants will be able to recognize common crises, identify the appropriate steps to help a person experiencing a crisis, and know when to call for emergency help is needed.

This year, the Epilepsy Foundation has a variety of ways children can participate in NEAM efforts. They can, for example, wear something purple – the official color for epilepsy – and share epilepsy facts with friends and classmates.

Youth can also create a poster or flyer with facts about epilepsy and have their teacher post it in the classroom or elsewhere in the school. Other ideas include giving a short school presentation on epilepsy, texting friends or family members about epilepsy, planting purple flowers, and using purple chalk to make pictures. drawings on their sidewalk or driveway.

Additionally, young people can raise awareness and fundraise for the epilepsy community by joining the Purple Pumpkin Project and painting their orange pumpkin purple.

The organization is also encouraging her supporters to follow her on social media and change their Facebook profile picture to help raise awareness. It has downloadable graphics available.

Other ways to get involved include volunteering for the foundation as an epilepsy awareness ambassador, as well as multiple fundraising efforts, including the Walk to End Epilepsy and a month-long #GameOverEpilepsy global event. Supporters are also encouraged to come up with their own fundraising ideas, such as having a backyard barbecue or running a marathon.

Elsewhere, Advanced Neurosurgery Associates marks the month by offering seizure information and sharing epilepsy stories. And the Northeast Regional Epilepsy Group is asking its supporters to help raise awareness and celebrate people with epilepsy. In addition, the Dravet Syndrome Foundation has special T-shirts for the month.

Dravet syndrome is thought to affect about 1 in 15,700 people.

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