Epilepsy – Kepplah http://kepplah.com/ Thu, 10 Jun 2021 12:05:41 +0000 en-US hourly 1 https://wordpress.org/?v=5.7.2 https://kepplah.com/wp-content/uploads/2021/05/kepplah-150x150.png Epilepsy – Kepplah http://kepplah.com/ 32 32 UCSF Rosenman Institute Announces Rosenman Innovators 2021 https://kepplah.com/ucsf-rosenman-institute-announces-rosenman-innovators-2021/ https://kepplah.com/ucsf-rosenman-institute-announces-rosenman-innovators-2021/#respond Thu, 10 Jun 2021 12:00:00 +0000 https://kepplah.com/ucsf-rosenman-institute-announces-rosenman-innovators-2021/

SAN FRANCISCO, June 10, 2021 / PRNewswire / – UCSF Rosenman Institute is proud to announce the 2021 Rosenman Innovators Cohort, a group of early stage health technology companies chosen for their innovative technologies and impact on patients.

2021 is the sixth year of the Rosenman Innovator Selection Round, which aims to identify promising companies seeking funding from the seed stage to Series A. The number of applicant companies has increased by 20 % compared to 2020 figures, itself a record year.

“I am delighted to welcome these ten amazing companies to our program,” said Christine winoto, Founder and Executive Director of UCSF Rosenman Institute. “We chose them because their technologies meet important patient needs and have great market potential, and we believe their teams can do the job. In addition, the founders of Rosenman Innovator are an increasingly vital group at the heart of our ecosystem, sharing their knowledge and connections with other founders. “

Rosenman Innovators from previous years include Koya Medical, which recently received FDA clearance for Dayspring™ active compression therapy system to treat lymphedema; GT Medical, which recently enrolled its first patient in a clinical trial evaluating GammaTile® Therapy in patients with metastatic brain tumors; and EMME, maker of the EMME smart case for birth control pills, named by Fast Company as one of the 10 most innovative wellness companies of 2021.

The Rosenman Innovator 2021 cohort:

  • Auricle, Inc. is a medical device company focused on commercializing the first validated and effective therapy that treats tinnitus at the source.
  • Avenda Health built a male “lumpectomy” for prostate cancer to preserve quality of life. Their AI-based laser ablation can be performed in a doctor’s office under local anesthesia.
  • Evren Technologies Advances PTSD treatment with user-friendly products including a headset that treats PTSD via neurostimulation, symptom tracking app, remote clinician monitoring, and PTSD patient database.
  • Fibralign Corporation produces therapeutic devices using its patented Nanoweave technology that creates a bio-scaffold that precisely mimics human tissue. Fibralign’s first product tackles lymphedema, an incurable global chronic disease.
  • imvaria is a healthcare technology company that develops and markets digital biomarkers, machine learning tools to drive diagnosis and risk stratification in severe and rare diseases.
  • Invenio imagery develops the NIO laser imaging system, designed to streamline intraoperative histology, reduce operating room downtime and allow examination of specimens from multiple sites in the surgical cavity.
  • Noleus Technologies, Inc. is developing a low-risk therapeutic device to reduce postoperative ileus. It’s a $ 5.8 billion TAM, and Noleus is a start-up company with intellectual property issued with a 510K FDA route.
  • Novela Neurotechnologies, Inc. markets nEureka®, a patient-centric data platform that enables personalized remote care for epilepsy. nEureka® harnesses smart wearable devices to enable users to manage all aspects of their epilepsy 24/7.
  • OOTify, Inc. is an online mental health center serving the entire spectrum of mental health, from psychoeducation for all, to digital phenotype matching with the best clinical / subclinical resources for them, to teletherapy.
  • SpineX inc. develops TESCoN, a non-invasive spinal cord neuromodulator to activate and recycle spinal neural circuits responsible for the control of function.

About the Rosenman Institute at UCSF
UCSF Rosenman Institute, a QB3 health technology initiative at University of California, San Francisco, is a community of investors, clinicians and technology entrepreneurs who create solutions for unmet clinical needs. Its mission is to drive innovation and education and improve patient care by helping entrepreneurs from concept to commercialization. No UC affiliation is required to gain support from the UCSF Rosenman Institute. Visit https://rosenmaninstitute.org/.

CONTACT: Kaspar Mossman, (415) 514-9790, [email protected]

SOURCE UCSF Rosenman Institute

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Q-State Biosciences Announces Presentation at XVI Symposium on Trials of Antiepileptic Drugs and Devices | Business https://kepplah.com/q-state-biosciences-announces-presentation-at-xvi-symposium-on-trials-of-antiepileptic-drugs-and-devices-business/ https://kepplah.com/q-state-biosciences-announces-presentation-at-xvi-symposium-on-trials-of-antiepileptic-drugs-and-devices-business/#respond Wed, 09 Jun 2021 21:02:34 +0000 https://kepplah.com/q-state-biosciences-announces-presentation-at-xvi-symposium-on-trials-of-antiepileptic-drugs-and-devices-business/

CAMBRIDGE, Mass .– (BUSINESS WIRE) – June 9, 2021–

Q-State Biosciences (“Q-State”), a discovery and therapy technology company that develops programs for the treatment of epilepsy, pain and other central nervous system disorders, today announced that the company will present at the next 2021 Antiepileptic Drug and Device Trials (AEDD) XVI Symposium to be held from June 16-18.

The presentation, titled “Technology-derived Antisense Oligonucleotide Therapeutics for Severe Monogenic Epilepsies”, will highlight the company’s platform validation for the therapeutic discovery of epilepsy and initial proof of concept data targeting UBE3A for the Dup15q syndrome.

The details of the presentation are as follows:

Session title:

Session VIII: Drug pipeline – Preclinical

Date and time of the session:

June 18, 2021, 8:50 a.m. to 10 a.m. EST

About Q-State Biosciences

Q-State Biosciences is a discovery and therapy technology company based in Cambridge, Massachusetts. We integrate advanced human neural models, proprietary determinative measurement engineering, and powerful AI / machine learning to discover and develop novel therapies for epilepsy, pain, and other CNS disorders. For more information, please visit www.qstatebio.com.

View source version on businesswire.com:https://www.businesswire.com/news/home/20210609005784/en/

CONTACT: Business Development

Chani maher


+1 617-945-5433


Carolyn Noyes


+1 781-235-3060



SOURCE: Q-State Biosciences

Copyright Business Wire 2021.

PUB: 06/09/2021 17: 00 / DISC: 06/09/2021 17:02


Copyright Business Wire 2021.

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Former NFL player climbs Mount Everest while blind https://kepplah.com/former-nfl-player-climbs-mount-everest-while-blind/ https://kepplah.com/former-nfl-player-climbs-mount-everest-while-blind/#respond Wed, 09 Jun 2021 05:42:00 +0000 https://kepplah.com/former-nfl-player-climbs-mount-everest-while-blind/

SUN VALLEY, Idaho (KMVT / KSVT) – A local resident has returned home after climbing Mount Everest.

With this feat, Mark Pattison became just the second NFL player to climb the Seven Summits, or the highest peaks of each continent.

May 23, 2021 will be a day Pattison will never forget, the day he reached the top of Mount Everest.

“When we woke up that morning and started our ascent at 12:30 pm, it was awful, we had snow, slush blowing hard,” Pattison said. “It all resolved around 4.30am and we had a beautiful sunrise, my problem is that I ended up getting snow blind.”

Pattison couldn’t see one of his eyes.

“And it can be a very scary experience when you rely on your safety lines hanging on the mountain and they don’t work and you look straight off that cliff,” he exclaimed.

And due to a language barrier with his Sherpa, provided an even greater challenge.

“He didn’t understand exactly what I was going through,” Pattison said. “I had no energy and I couldn’t see with my eyes and on the way down I ran out of oxygen, and he was in such a rush to get back to base camp, he left me, so I was on the balcony about 27,500 feet with no oxygen and no gasping air A Russian comes down and he is checking my tank and he {speaks Russian} so I say ‘please tell my Sherpa to stop. ‘

After climbing Mount Everest, he had hoped to climb Mount Lhotse, the world’s fourth highest peak in 24 hours, but his mind and body canceled those efforts.

“I came down and thought to myself that there was no way I would end up as a permanent resident on the mountain.”

The mountain is known as the tallest cemetery in the world, claiming the lives of over 300 climbers over the past 80 years.

“So when I passed Hillary Step there is my Antarctic tentmate that I spent three weeks with and he failed in 2019 and he is lying there,” explained Pattison.

In fact, one of the Sherpas delivering supplies to his party also died.

“You have to do what you have to do to survive and get through this, that you don’t have time for empathy.”

The trip lasted 70 days and it endured bad weather.

“You hear an avalanche in your tent and say oh, it’s just another avalanche.”

And while the Mount Everest Climbing Award will provide a lifetime of memories, the support behind the climb, from the community to the NFL, has raised more than $ 56,000 for epilepsy awareness by the foundation bias called Higher ground.

“There’s so much danger up there, I’ve had a lot of people who were just seriously worried and sending a lot of prayers my way,” Pattison said.

It’s because of his daughter Emilia, who is the driving force.

“I kept saying that if Emilia can fight this epilepsy, I can climb this mountain.”

Pattison was a wide receiver for the Los Angeles Raiders and New Orleans Saints. The NFL Network is working on a documentary about Pattison’s trip which is scheduled to air around September 1. He would like it to premiere at Sun Valley, with a panel discussion.

Follow Mark Pattison on social media:

Facebook: @ NFL2SevenSummits

Instagram: @MarkPattisonNFL

Twitter: Mark PattisonNFL

LinkedIn: Marc Pattison

Copyright 2021 KMVT / KSVT. All rights reserved.

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Zogenix opens photo contest to benefit Dravet advocacy groups https://kepplah.com/zogenix-opens-photo-contest-to-benefit-dravet-advocacy-groups/ https://kepplah.com/zogenix-opens-photo-contest-to-benefit-dravet-advocacy-groups/#respond Tue, 08 Jun 2021 19:50:45 +0000 https://kepplah.com/zogenix-opens-photo-contest-to-benefit-dravet-advocacy-groups/

Biopharmaceutical company Zogenix launches photo-sharing campaign and community competition on Dravet syndrome to benefit the Dravet Syndrome Foundation and the Epilepsy Foundation.

American families of Dravet patients whose seizures are treated with Fintepla (fenfluramine) – an adjunct therapy developed by Zogenix – may enter the Fintepla photo diary competition before June 9.

The company is asking patients, or their caregivers, to share photos of their daily lives, raising up to $ 50,000 for the two foundations.

The idea is to describe and celebrate what life is like with fewer crises. Fintepla is a medicine from Dravet taken with other anti-epileptic drugs to reduce the frequency of the seizures that characterize the disease. The combined contest and campaign also aims to showcase the community and encourage support among those affected by Dravet syndrome.

“We are constantly inspired by the Dravet community and members’ support for one another,” Ashish Sagrolikar, Commercial Director at Zogenix, said in a Press release.

“These families have taught us the importance of capturing moments in everyday life that can arise when crises are not. We believe these moments are worth recognizing, ”said Sagrolikar.

“At Zogenix, we are committed to working alongside Dravet syndrome and the broader epilepsy community to celebrate more everyday moments, and we hope the Fintepla photo journal inspires others to do the same,” said he added.

After registration, participants can upload between five and seven photos, with a short caption for each. Starting June 21, community members will be able to “like” and share their favorite images on the campaign’s Facebook page once per day.

From June 21 to July 19, whenever a like or share occurs, Zogenix will donate $ 25 – up to a maximum of $ 50,000 – to the Dravet Syndrome and Epilepsy Foundations.

At the end of the campaign, the family with the most likes and shares of their submission will win an outdoor photoshoot with a local photography agency. Two finalist submissions will receive iPads. Winners will be announced on or around August 9th. Prices are limited to one person per household.

“With my daughter’s seizures better controlled, we capture even more family time,” said Bethany Goering, whose 12-year-old daughter has Dravet.

“The campaign and the contest of the photo journal Fintepla is an opportunity for us to share the hope we have between crises,” said Goering, who cares for her daughter.

“We are delighted that our participation supports advocacy groups that help other people with Dravet syndrome,” she added.

Patients with Dravet syndrome may have several seizures each day. They also present marked developmental, motor and behavioral impairments.

Fintepla was approved in the United States last year to treat Dravet patients 2 years of age and older.

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8-year-old rescued by stranger after nearly drowning in High Rock Lake https://kepplah.com/8-year-old-rescued-by-stranger-after-nearly-drowning-in-high-rock-lake/ https://kepplah.com/8-year-old-rescued-by-stranger-after-nearly-drowning-in-high-rock-lake/#respond Tue, 08 Jun 2021 02:58:59 +0000 https://kepplah.com/8-year-old-rescued-by-stranger-after-nearly-drowning-in-high-rock-lake/

DAVIDSON COUNTY, North Carolina (WGHP) – A family in Winston-Salem is searching for the alien who rescued their son after he nearly drowned in High Rock Lake on Sunday afternoon.

Ivan Gomez disappeared underwater for nearly a minute after suffering a seizure in the Buddle Creek swimming area.

When the 8-year-old’s father lifted his lifeless body from the water, a stranger stepped in to perform CPR.

“It’s scary, it’s very scary. You never know when something like this is going to happen, and you don’t think it could be your child, ”said Christina Gallardo.

Gallardo’s son lives with a severe form of epilepsy. He was on a seven-day seizure-free period when Sunday’s attack crippled him in the water.

“I feel very lucky! I’m just happy to have my son, people don’t understand how dangerous it is. How important it is to know how to handle crises, especially around water, and what to do when a person has a crisis, ”said Gallardo.

Whether it’s fate or the right timing, a life has been saved.

“I want to find this person and thank them because without him my son would not be here today,” said Gallardo.

The family are hoping someone will remember the man with the goatee in a white tank top and blue swimsuit, so they can personally thank him for giving Gomez a second chance.

Gomez spent the night in the hospital, but he’s already feeling better.

He still has a small amount of water in his lungs, but doctors say it will absorb on its own.

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Local store helps girl raise donations for research for rare type of epilepsy https://kepplah.com/local-store-helps-girl-raise-donations-for-research-for-rare-type-of-epilepsy/ https://kepplah.com/local-store-helps-girl-raise-donations-for-research-for-rare-type-of-epilepsy/#respond Mon, 07 Jun 2021 16:14:53 +0000 https://kepplah.com/local-store-helps-girl-raise-donations-for-research-for-rare-type-of-epilepsy/

EL PASO, Texas (KTSM) – In Bloom is selling Lennox-Gastaut Syndrome Awareness Ribbon Bath Bombs to raise funds on behalf of Lily Cadena who suffers from this disease.

Lily Cadena, 16, was diagnosed with LGS when she was just four years old. Her mother Tifni explains that the disease is a rare type of epilepsy that causes different types of seizures that occur on a daily basis.

“The triggers are unique for each person. For her, it is the low pressure system, when she is too tired or too stimulated, ”explained Cadena, Lily’s mother.

She said Lily needs to take a cocktail of drugs that help her control the seizures, but there is still no cure for the disease.

Lily’s fits sometimes cause her body to suddenly freeze and fall to the ground, often causing injury, even with constant supervision.

“It keeps her from doing things that she really loves and that’s the really sad part,” said Cadena, explaining how Lily enjoys going to baseball games but is often unable to do so due to her seizures. .

Cadena says her other favorite activities are singing and dancing, which requires the whole family to be on their feet.

“We have to watch her like a hawk as she sings and dances so that she doesn’t fall down and have a seizure, so it’s a family affair,” she said.

Cynthia Chavira is Cadena’s neighbor and the owner of a local In Bloom store.

She came with Lily’s mother and created LGS Awareness Ribbon Bath Bombs to raise funds on Lily’s behalf.

“I wanted to raise awareness of Lily’s situation and I know her parents go through a lot on a daily basis, and seeing them go through something so difficult puts into perspective the things we don’t realize that are so easy for us on a daily basis. “said Chavira. .

Proceeds from the bath bombs will be donated to the LGS Foundation, which Cadena says helps fund research into the disease.

Before Lily was diagnosed, Cadena and her husband saw many different doctors in the Borderland to find out what was happening to her. Cadena said all doctors would mistake the rare condition for common epilepsy.

They ended up finding a specialist in Phoenix, Az because El Paso does not have a pediatric epileptologist.

Since Lily was diagnosed, Cadena said her husband stopped working in order to take care of her as she needed constant monitoring.

With a plethora of medications and frequent doctor visits, Cadena explained, she finds herself in debt over $ 10,000 each year and receives no government assistance.

She hopes their fundraising will help find a cure for this debilitating disease and help more children be diagnosed earlier.

You can buy LGS bath bombs ($ 8) from In Bloom at 12301 Rojas Drive, preferably in cash as this facilitates donation transactions according to Chavira. All proceeds from the bath bombs will go to the LGS Foundation on Lily’s behalf.

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NC Bill to Legalize Medical Marijuana Pick Up Support | Government-and-politics https://kepplah.com/nc-bill-to-legalize-medical-marijuana-pick-up-support-government-and-politics/ https://kepplah.com/nc-bill-to-legalize-medical-marijuana-pick-up-support-government-and-politics/#respond Sun, 06 Jun 2021 19:31:00 +0000 https://kepplah.com/nc-bill-to-legalize-medical-marijuana-pick-up-support-government-and-politics/

Legal versus illegal

A push for legalized marijuana has developed in recent years. As of this year, 36 states and four territories allow the medical use of cannabis and 17 states, two territories and the District of Columbia have enacted laws to regulate the use of cannabis by adults.

Marijuana is still illegal in North Carolina, although it has been decriminalized in some ways. Possession of marijuana carries penalties ranging from no jail term to 21 months depending on the individual criminal record and the amount possessed.

“With New York and Virginia just legalizing it in different ways, we’re hoping North Carolina can jump on the legalization bandwagon,” said Laura White, owner of Soul Addict, a hemp grower and grower. “When you often have a little more THC in your products, we find that patients are able to find higher levels of relief. “

Berkowitz, White and Biddix said they knew people breaking the law and buying marijuana with the intention of self-medicating, mostly with positive results for the user.

But buying drugs in an unregulated market and without the help of a healthcare professional comes with significant risks.

“Buying it on the black market, you don’t know what’s in it. You read stories about people who do fentanyl and people who overdose,” Biddix said. “If legalized, it would ensure people buy safer, lab-tested, and more carefully cultivated plants for processing.”

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Luc | News | Cornish times https://kepplah.com/luc-news-cornish-times/ https://kepplah.com/luc-news-cornish-times/#respond Sat, 05 Jun 2021 19:03:30 +0000 https://kepplah.com/luc-news-cornish-times/

AN, 11, who ran every day for a month to support his young cousin raised over £ 1,500.

Luke Campbell has run a mile in his hometown of Torpoint each day in May to raise money for the Tuberous Sclerosis Association (TSA) and has so far grossed £ 1,515, having started with a goal of just £ 300.

Luke’s cousin Harvey, six, was diagnosed with Tuberous Sclerosis of Bourneville (TSC) when he was very young. The rare genetic disease affects all parts of the body, causing non-cancerous tumors to grow on vital organs such as the kidneys, lungs, liver and skin, and in the brain; it also leads to epilepsy and other disorders.

Luke is very good friends with his cousin Harvey, who lives in Lanivet, and so earlier this year he decided he wanted to raise funds for the organization, the Tuberous Sclerosis Association, which supports families affected by the disease.

He said: “I run to raise awareness of TSC and raise funds for the association, and in particular for my little cousin Harvey who suffers from TSC and epilepsy. It is also for every family and person living with TSC.

“I want to raise as much money as possible for my little cousin to raise awareness. Harvey mainly suffers from epilepsy and seizures every day. He is such a happy and loving boy.

“I feel very passionate about it. The money raised will be used to help families with children or adults living with this disease. “

Luke ran every day in May, rain or shine – and it rained a lot! said his proud grandmother Sharon.

But as Luke prepared for his last mile on Bank Holiday Monday, the sun was shining, residents came to cheer him on and his friends from Carbeile School also ran alongside him. Torpoint Mayor Rachel Evans was there to congratulate him on the finish line.

As Luke descended the home stretch, his little cousin Harvey was also running alongside him, proudly waving his TSA flag.

“The day was a total success! Sharon said. “Luke was very emotional when he was done, he just couldn’t believe how many people came out to support him. Overall a great day, lots of tears of joy and proud hearts.

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The Gannett Foundation to provide $ 2.3 million in crowdfunding and grant program https://kepplah.com/the-gannett-foundation-to-provide-2-3-million-in-crowdfunding-and-grant-program/ https://kepplah.com/the-gannett-foundation-to-provide-2-3-million-in-crowdfunding-and-grant-program/#respond Sat, 05 Jun 2021 11:01:54 +0000 https://kepplah.com/the-gannett-foundation-to-provide-2-3-million-in-crowdfunding-and-grant-program/

The pandemic has created financial challenges for many nonprofits and municipal organizations aiming to help their communities.

Groups can get a helping hand by contacting the 2021 A thriving community program, a $ 2.3 million initiative of the Gannett Foundation. the the program is sponsored by Gannett, the parent company of Herald-Tribune, and marks its fifth year of supporting groups that address social issues.

Starting this week, organizations can apply to raise funds for a specific project. They will first raise funds on their own through crowdfunding campaigns, and then they will be eligible for one of 15 national grants of up to $ 100,000. Separate incentives to reward high fundraising projects will also be offered.

“A thriving community is an opportunity for Gannett to raise local ideas and community needs by providing nonprofits with visibility, grants and exposure to new donors through the unique power of USA TODAY platforms and USA TODAY Network, ”said Sue Madden, Director. of the Gannett Foundation.

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State, Provider of Adult Foster Homes Reach Settlement Local News https://kepplah.com/state-provider-of-adult-foster-homes-reach-settlement-local-news/ https://kepplah.com/state-provider-of-adult-foster-homes-reach-settlement-local-news/#respond Fri, 04 Jun 2021 17:00:00 +0000 https://kepplah.com/state-provider-of-adult-foster-homes-reach-settlement-local-news/

The State Department of Human Services and KC Care LLC have reached a settlement to resolve a dispute over abuse and neglect cases in foster homes for people with developmental disabilities.

The state corroborated reports of abuse and neglect at KC Care foster homes and decided to revoke the provider’s licenses. Seaside-based KC Care challenged the state’s findings.

KC Care LLC, a Seaside-based adult foster home provider, had challenged the state’s findings regarding abuse and neglect.

The settlement was disclosed just before the trial began in Clatsop County Circuit Court in late May.

According to Sherryll Hoar, spokesperson for the Department of Social Services, Ken Biamont, the registered agent for KC Care, is resigning.

Biamont partner Cravalynn Weber will take over the company and be licensed subject to a successful background check, Hoar said.

Hoar said Weber would not apply for or license an adult foster home or provide services to anyone in foster care funded by the state’s Office of Developmental Disabilities Services for five years. .

KC Care does not currently operate any foster homes, according to the state, but is licensed to provide community life support services.

“The Office of Developmental Disorders Services authorizes and monitors programs supporting people with intellectual and developmental disabilities (I / DD) to ensure the safety of everyone participating in the program,” Hoar said in an email. “We can confirm that we have reached an agreement on the terms of a settlement that will protect people with I / DD who receive services from KC Care.”

Biamont and his lawyer could not be reached for comment.

In court files, Biamont’s lawyers denied the state’s findings of abuse and neglect and called the investigations biased and procedural flaws.

The Astorian reported in 2019 that investigations into abuse and neglect in adult foster homes on the North Coast revealed a lack of oversight in the county’s program for people with disabilities.

At the time, the county was responsible for overseeing a contract with Clatsop Behavioral Healthcare, a private non-profit organization, to coordinate with providers and help people with intellectual and developmental disabilities like autism, cerebral palsy, trisomy 21 and epilepsy.

Using the state’s public records law, the newspaper obtained documents that showed the state’s concern about the management of the program and how the state nearly pulled the contract in 2018 unless changes were made. be brought.

Many of the problems with the lack of oversight stem from the state’s investigations into KC Care.

A few months after the state’s concerns became public, the county council of commissioners voted unanimously to transfer oversight of the developmental disability program entirely to the Department of Social Services. The state now oversees the contract with Clatsop Behavioral Healthcare.

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